People who fit your context
Find support by same gene, condition, symptom family, role, country, language, or journey stage, even when the exact match is not obvious yet.
Community layer
RareFriends™ by Pocket Genes
A careful peer-support layer for the moment after genetic results arrive. RareFriends™ helps you find people, organizations, events, resources, and updates that are relevant to your genetic context without making your private report public by default.
How community works
Find people and groups that match your rare-disease journey.
More people are receiving genetic results, but the path after the report can still feel fragmented. RareFriends™ by Pocket Genes can match by gene, condition family, symptoms, role, language, country, and journey stage, so support is still useful when an exact-gene circle is quiet.
Organizations and events
Follow verified organizations, webinars, support programs, and events that can help after a confusing result, not just during the test itself.
Practical next steps
Move from result to understanding to a saved appointment question, resource, event, or learning module.
Emotional and practical support
A rare journey can feel isolating. The goal is useful responses, daily-living support, and shared experience.
Pseudonymous participation
Participate without exposing a full identity, exact variant, or original report.
Moderated safety
Clear rules, reporting, blocking, and moderation help prevent misinformation, pressure, and re-identification.
Layered matching
You do not need an exact diagnosis match to find useful support.
The post-result journey is rarely linear. Someone might belong to an exact-gene circle, a broader condition family, a caregiver circle, a regional group, and a newly diagnosed journey at the same time.
Trust first
Community works best when usefulness, moderation, and trust come first.
A meaningful next step can be understanding a report section, getting a useful answer, following a trusted organization, registering for an event, or preparing a better appointment question.